Survey for people living with dementia and carers
We are pleased that McGill University of Montreal, Canada has been commissioned to deliver the next two editions of the World Alzheimer Report on the crucial and inter-related topics of Diagnosis (2021) and Post Diagnostic Support (2022).
The second key task of the report is the survey for people living with dementia and informal carers. In the context of this survey, an informal carer is a family member, friend or neighbour who is not paid to provide care or support. This survey is open until Monday 17 May.
We invite you to complete the survey if you are living with dementia, provide informal care or have previously provided informal care for someone living with dementia. The survey should take no more than 10 minutes to complete.
The survey is available in English, French, Spanish and Portuguese. You will be able to select the language you are most comfortable with from the language selection menu on the top of the survey form.
Survey for Clinicians
The first survey of the World Alzheimer Report 2021 is aimed at neurologists, geriatricians, gerontologists, psychiatrists and all those working in memory clinics and healthcare centres globally.
Due to a high volume of respondents, the survey for clinicians is still open. It takes around 15 minutes to complete and is available in English, French, Spanish and Portuguese.
Survey for Alzheimer associations
The survey for Alzheimer associations will be made available soon. Please subscribe to our email updates for your invitation to take part.
More about McGill and the report
This report will be overseen by the McGill University Research Centre in Studies in Aging and the McGill Faculty of Medicine and Health Sciences, specifically the Division of Geriatric Medicine and the Dementia Education Program, supported by the Office of Education Technology and Online Learning at the Steinberg Centre for Simulation and Interactive Learning. Together, they are leading complementary initiatives devoted to prevention, diagnostics, management, education, knowledge dissemination and support for care partners.
Chris Lynch, ADI’s Deputy CEO and Director of Policy, Communications & Publications said: “We are delighted to be working with such a dynamic and experienced team at McGill.”
We are on the cusp of breakthroughs in both treatment and diagnostics, which will influence the next two World Alzheimer Reports, and the McGill team has the expertise to bring the clinical, care and innovation elements together and to capture the vital voice and lived experience of people with dementia and their carers.
An expert team led by Dr. Serge Gauthier, with Dr. Pedro Rosa-Neto, Dr. José A. Morais, Claire Webster, Dr. Tamara Ellen Carver, Zeina Salameh, Carol Servaes, Maria Vincelli, Diane Weidner and Leila Zahabi are already working towards the 2021 report: ‘Journey through the diagnosis of dementia’. The report is scheduled for launch during World Alzheimer’s Month 2021, alongside a global awareness raising campaign.
Dr.Gauthier, on behalf of the McGill team, said: “We strongly believe that our combined experience and expertise in research, care, education and lived experience in dementia-related illnesses will provide a tangible, meaningful and inclusive report on diagnosis and the management of dementia to Alzheimer’s Disease International.“