Privacy notice


At Alzheimer’s Disease International, we are committed to respecting your privacy. This document explains when and why we collect personal information about people who visit our website, how we use it and the conditions under which it may be disclosed to others.

Who are we?

Alzheimer’s Disease International (ADI) is the international federation of Alzheimer associations around the world. We are a non-profit organisation registered in Illinois, USA (EIN 36-3366783), although our main office and website hosting are in the UK.

How do we collect information from you?

We obtain information about you when you use our website, when you contact us, when make a donation, and when you sign up to receive news from us.

What type of information is collected from you?

The personal information we collect might include your name, address, email address, IP address, browser type, information regarding what pages you access and when, as well as any information you voluntarily provide by entering it into a form.

If you make a donation online, your card information is not held by us, but is collected by our third party donation processors, who specialise in the secure online capture and processing of credit/debit card transactions.

How do we use your information?

We may use your information to:

  • send you communications which you have requested and that may be of interest to you. These may include information about conferences and events, campaigns, appeals, other fundraising activities, and promotions of goods and services;
  • process donations that you have made;
  • to carry out our obligations arising from any contracts entered into by you and us;
  • seek your views or comments on the services we provide;
  • notify you of changes to our services;
  • improve and develop our website and other activities.

We review our retention periods for personal information on a regular basis. We are legally required to hold some types of information to fulfil our statutory obligations. We will hold your personal information on our systems for as long as is necessary for the relevant activity, or as long as is set out in any relevant contract you hold with us.

Your choices

You can choose whether or not you wish to receive information from us by indicating your choices on online forms or as part of transactions with us. After you start receiving communications from us about our work, campaigns and appeals, you can tell us that you no longer want them by contacting us. You can also unsubscribe from email communications by using the link at the bottom of our emails.

Who will your information be shared with?

We will not sell or rent your information to third parties. We will not share your information with third parties for their marketing purposes (although we may promote the services of third parties in our communications to you).

All employees and agents who have access to your personal data and are associated with the handling of that data are obliged to respect your personal data and your privacy. See below for some of the third parties that we work with to provide our website services.

We may transfer your personal information to a third party as part of a transfer of some or all of our assets to a third party or as part of any business restructuring or reorganisation, or if we’re under a duty to disclose or share your personal data in order to comply with any legal obligation or to protect the rights, property or safety of others. However, we will always aim to ensure that your privacy rights continue to be protected.

Transferring your information outside of Europe

As part of the service offered to you through this website, the information which you provide to us may be transferred to countries outside the European Union (“EU”). As a US-registered organisation, we work with agents and partners in the US and elsewhere. These countries may not have similar data protection laws to the UK. By submitting your personal data, you’re agreeing to this transfer, storage or processing. If we transfer your information outside of the EU in this way, we will take steps to ensure that appropriate security measures are taken with the aim of ensuring that your privacy rights continue to be protected as outlined in this document.

Accuracy, updates and concerns

ADI tries to keep the information we have about you accurate and up to date. If you change address, or find errors or inaccuracies in your data, we will erase, complete or amend that information on request. You can also request a copy of the information we hold about you. To make requests, or if you have any questions or concerns about your data, please contact us.

Use of Cookies

Cookies are pieces of information that are sent to your computer by our website, in common with many websites. They are stored on your device, allowing us to recognise you when you next visit. If you do not want cookies to be stored on your computer, it is possible for you to disable them in your browser settings. Our website uses services from third parties which include cookies, as noted below.

Third parties

We may pass your information to our third party service providers, agents, subcontractors and other associated organisations for the purposes of completing tasks and providing services to you on our behalf (for example to process donations and send you mailings).

This website uses Google Analytics, a web analytics service provided by Google, Inc. Google Analytics uses cookies to help us analyze how users use the site. The information generated by the cookie about your use of the website will be transmitted to and stored by Google on servers in the United States. This information will include your IP address, but we have “IP Anonymization” enabled, which means that Google will remove part of the address as soon as possible and it will not be stored. Google will not associate your IP address with any other data held by Google.

Google Analytics uses the information for the purpose of evaluating your use of the website and compiling reports on website activity. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. You may refuse the use of cookies by selecting the appropriate settings on your browser. By using this website, you consent to the processing of data about you by Google in the manner and for the purposes set out above. Google’s privacy policy applies to the data collected.

Cloudflare, who provide a service to accelerate and secure our website, may include cookies with our pages to provide a better service. Cloudflare’s privacy policy applies to the data collected (referred to as “End Users”).

Donations are handled on our behalf by Charity Checkout and their terms and conditions and privacy statement apply to those transactions and the pages on which the payment forms appear.

Some information and donation forms relate to Friends of ADI, the UK-registered charity that exists to support the work of ADI and its members.

We also link to other websites which we do not have a direct relationship with, and we cannot be responsible for the privacy of data collected by other websites.

Review of this policy

We will review and revise this policy from time to time. We may choose to just update this page, or to announce changes more widely, as appropriate. This policy was last changed in May 2018.